From the Texas Tribune
“Some children who receive private duty nursing, a more continuous type of medical care in their homes, could lose their ability to live at home if an HHSC rule change goes into effect.
As Komika Sales returns home from work, her son’s nurse completes his evening routine — giving him his last medications, connecting him to his ventilation machine. After the nurse leaves, Sales and her son gather on the couch, giggling together as he uses his iPad or plays with blocks.
A stricter rule from Texas’ human services agency might make their bedtime ritual impossible. Her 16-year-old son could no longer receive nursing — therefore taking away his ability to live at home.
‘It’s awful because the whole goal is to keep him at home,’ Sales said of her son, Micahi Neal.
A proposed rule change from the state’s Health and Human Services Commission would not allow an adult “to be away from the home for any period of time” whenever a nurse is providing services, according to documents obtained by The Texas Tribune.”